Jean Pasco Cancer

May 09, 2005

Round 2 dose 1

I had intentions of writing this update last Wednesday enroute to Florida, but my laptop never made it out of my bag and the next few days passed like a whirlwind. Its now Sunday afternoon and I’m on the flight home. I was in Marco Island, Florida for work. We have employees all over the world and every few years we have a meeting where everyone gets together. There were a few team building and bonding exercises – like building a raft on which we had to float a margarita (in the ocean with the waves pouring in). We accomplished pretty much everything we set out to, plus found some time for fun – like a 2 hour Jet Ski expedition. The ocean was a bit rough so at first it was a little frightening going at 5 and 6 foot swells, but by then end we were charging headfirst at the waves and flying off of them like it was nothing. Tough job, but somebody has to do it. Monday it’s back to the office as usual.

I had my first dose of Round 2 on Tuesday before leaving for Florida. The 2 weeks I had off from treatment flew by. Though I didn’t visit the hospital once during the break, I still felt as though I had never left. Things went smoothly and I felt OK afterwards. We had some discussions about my diarrhea because it didn’t really slow down during the break. I am going to push forward with treatment, try a few other homeopathic options and see where things go. As long as I am not getting dehydrated they want me to continue at my current dose levels. I’m taking it one week at a time. I only had minor problems with the taste buds on Wednesday and I am feeling wicked exhausted today, but no new symptoms which is always good. Dose 2 is on Tuesday and I’m hoping to catch up on some sleep before then.

This trip was a good test for me to see if I am ready to start taking on more work travel and I discovered I most definitely am not ready. My system couldn’t handle pretty typical American food and I made more trips to the bathroom than I can count, so it’s apparent that I’m not ready to take off for Timbuktu and whatever their local delicacy may be. I’m disappointed - it’s been 6 months since my surgery and I’m nowhere near back to pre-surgery condition. I know it takes longer each time to bounce back, but my intestines are showing no signs of slowing down. My doctors tell me to be patient, but everyone realizes my patience is wearing thin.

I’m going to cut this short before I start whining and complaining and writing something that even I don’t want to read. I’ll post again later this week after my next dose. I’ll be home and more rested which will be better for everyone.

Posted by jean at May 9, 2005 09:31 AM
Comments

is it already time to start again? my how time flies when you don't have those side effects!!! as for whinning i think you are allowed and we will listen and commiserate with you and although we cannot begin to understand what you are going through know that we are sending out all our engergy to you and saying our prayers for you. hang in there kid, you're doing fine. zertog auntie sandy

Posted by: auntie sandy at May 9, 2005 01:02 PM

Jean
Glad you were able to take a working trip to florida. I will keep good thoughts that all will be successful
Anne

Posted by: anne at May 9, 2005 02:32 PM

Jean,

I certainly know what you are going through. It has been over 10 months since my last surgery and I have just recently been having some good days, where I only have to go to the bathroom about 4 times a day. Some days are still rough where I have to go about 8 times or so.

I was taking tincture of opium, but went back to Imodium and I think that has helped.

I wish there was something we could all do to make things better, but it seems that time is the only thing we have, and we just have to hang in there. Just know that you aren't going through this alone.

Take care. Things will get better.

Kevin

Posted by: Kevin at May 10, 2005 07:57 AM

We hope that we get to see you and Pat soon! We want to share stories about the wonderful Florida weather:)

Love,
Kate and Paul

Posted by: Kate and Paul at May 10, 2005 04:00 PM