July 17, 2005
Overdue posting!!
I’ve been on a regular schedule of writing and posting every Wednesday for the past 5 months, but time got away from me last week. I was busy at work trying to wrap things up before taking off for a mini-vacation on Thursday evening. The good news is that there really wasn’t anything for me to report last week. I’ve been enjoying my time off Erbitux and getting my strength and energy back though this has taken almost the full two weeks to reach this point. The rash continued to get worse during the first week off, but now has almost completely subsided, just in time for Dose 1, Round 3. I’m not going to start complaining about this yet, I’ll leave that for later in this round. I’ve been on the increased dose of Sandostatin for 2 weeks now and am starting to see a difference. I’m certainly not constipated, but my trips to the bathroom each day are now under double digits. And I’m not as afraid to venture away from my comfort zones, like into the forest for another mountain climb (Speckled Mountain). It wasn’t as high as Mt. Tecumseh, but the whole hike was a lot longer at 8.2 miles.
I was exhausted and sore at the end of the day, but very satisfied with my latest accomplishment. Instead of hiking again on Saturday we decided to soak in the local air (Bethel, ME) and hung around for the Mollyockett Day parade. Pat took pictures – I’ll post them later. We took our time driving, stopped at Poland Spring and saw “The Source”, played a really lousy game of mini golf, and finally ended up in Portsmouth, NH. It was a great weekend – lots of relaxing and culminating in a really delicious dinner at the Wellington Room in Portsmouth, NH. And being able to enjoy a meal like this makes my twice daily shots of Sandostatin worthwhile.
Pictures of this and the previous several trips to follow – eventually!!!
Hi Jean and Pat!
Good to hear that Jean's rash is much better and that everything seems to be going well. Glad you enjoyed your long weekend away! We hope to see you both soon!
Love,
Kate and Paul
i love these no-news/good news ones. we absolutely celebrate them, as you guys do. fabulous about the diarrhea drug.!!! worth all those black and blue marks,and happy birthday!!! zertog, auntie sandy
Posted by: auntie sandy at July 19, 2005 08:49 AMHi Jean,
Sorry I haven't been in touch. You are always in my prayers though. Sounds like you are doing great. You haven't grown a tail have you???? We've been busy helping Lori house search and buy, and helping Sue&Lou move to Little Egg Harbor. I will be in touch again and a happy belated birthday!
Luv Patty
Hi Jean - I am happy to hear all is going well.
Would you believe I have just heard of another case like yours. My friend Kathy Browning's daughter Stephanie was just diagnosed with the same cancer. Her appendix was removed last year but they said a cell must have gotten out when they removed it. She is going to Washington DC to a Dr. Sugarbaker for surgery and chemo. I couldn't believe it when Kathy told me. The doctor told her he has only seen two cases of this cancer.
Sorry I'm rattling on, but it really took me by surprise. Two Bloomfield residents with the same cancer, and rare at that!
Talk to you soon.
Luv
Patty
