September 06, 2005
A dull moment…
We made a mutual decision with my oncologist to skip my Erbitux treatment today. Last weeks hospitalization and procedure took a bit more out of me than I wanted to admit. I had some pain and discomfort that lingered until today and even though I am used to pain, I had to take some pain pills to get through the nights. Plus, the stent leaves me with a feeling of pressure, so I am constantly running to the bathroom even though I don’t really have to go. Hard to tell the difference at 3AM.
The plan is for me to have treatment the next 3 Tuesdays, followed by a CT scan. Beginning in October my treatment schedule will work around my travel schedule, which should mean that I am at 100% (or as close to it as I can get) when I take off for all those exotic locales. Because there is no protocol to follow, we are making this up as we go along, so Dr. Lange felt that I was not taking any risk by changing the treatment schedule. He also told me that he has not had one patient yet that has been able to tolerate the treatment plan recommended by the manufacturer, which made me feel better.
All for now.
Dear Jean,
I am sorry to hear about the pain and all the bathroom trips. I am glad that you are taking a week off, and that you have found a way to work around your treatment schedule so that you can travel--that is so important.
Love,
Kate
