Jean Pasco Cancer

April 07, 2006

Being home is exhausting

I’m still very happy to be home, but boy was yesterday a busy day. The phone didn’t stop ringing – a combination of doctors offices checking on me and stopping one of my antibiotics temporarily and other people just checking in to make sure I was home OK. All my home care services came in to make sure I was set up with everything I needed. Then the physical therapist came in to assess me and start me on an exercise program. It was a good day, but my afternoon nap felt really good.

I’m sleeping well in my own bed, getting around the house with either a walker or crutches, depending on my mood, and getting my appetite back. And today, a big accomplishment – I took a shower!!! We got a shower chair that I was going to use, but it was too big for our tub, so I decided to try it standing up. I was able to hold on and stay upright for a full shower including washing my hair. It was definitely a big improvement over sponge bathing.

Energy levels go up and down as I try to do more, but that’s to be expected. I still don’t have a great attention span so I tend to do things for short amounts of time, though I didn’t manage to watch an entire movie last night. Mom and dad are still here and both Pat and I are grateful for the assistance. Mom makes sure I’m eating and drinking and dad is getting good a playing drill sergeant to get me to do my exercises.

I’ve got a long road ahead of me, but I know I’ll make it through eventually. Right now though, I’m going to have some lunch and find some other way to distract myself for a while.

Posted by jean at April 7, 2006 12:44 PM
Comments

Hi Jean,

I am glad to hear that you are making progress. I am sure you are tired - you have been through a lot! Please let me know if I can do anything for you. I think of you often and wish only the best for you.

Love,
Kate

Posted by: Kate at April 7, 2006 03:32 PM

Hey,
you know Dads going to be on your ass 24/7
Good luck..
Smile,
LOve Danny

Posted by: Danny at April 7, 2006 05:04 PM

Hi Jean

Glad to hear you are getting around better and are back in your own place. Keep up with the positive attitude as every day will get better and you will feel stronger. What an incredible support system you have with all the health care workers but number one will always be Pat - he is the best. Love to you both and keep smiling.

Love Carolyn

Posted by: Carolyn at April 8, 2006 05:52 AM

This one is for Mom & Dad. Saw Bea at mass this morning and she wants you to know she is praying for you as well as Jean & Pat. She is so happy tha tI can check in on th "blog" ansd tell her what's going on. Love to you all. Jose

Posted by: Jo Halpin at April 9, 2006 03:50 PM

hi guys, great news about waltzing around the old apartment and the shower!! it's amazing the little things that bring us great happiness when we can't do them!snatched a palm for you from church on sunday and said extra prayers. countdown till easter. wrote the gasbarro bugs a note from the "easter bunny" and told them to look for the gold coins in the eggs(yes, boys and girls there are real gold american dollars)keep up the good work both of you. the jamestown bridge got a reprieve of one week so maybe you'll feel better on the week she goes down!!! hugs and kisses auntie s.

Posted by: auntie sandy at April 10, 2006 11:55 AM